The Sickle Cell Disease Implementation Consortium (SCDIC) is the first research program to use Implementation Science to identify and address barriers to quality care in Sickle Cell Disease (SCD). Implementation science examines study methods that promote the adoption of research findings into healthcare. Therefore the broad scope of implementation science is particularly suited to address healthcare in SCD. SCDIC is a cooperative research program that will promote the development and evaluation of strategies that take a multi-modal, multi-sector approach to 1) conduct a needs- based community assessment of the barriers to care for subjects with SCD, 2) design implementation research studies that address identified barriers to care and 3) participate in the development of a SCD Registry, in collaboration with clinical centers and the NHLBI. Each Clinical Center is expected to enroll and follow at least 300 adolescents and adults with SCD into the SCD Registry.
For more information – go to SCDIC