Sickle Cell Disease in the News
Northeast Louisiana Sickle Cell Anemia Foundation (NELASCAF) is the leader in promoting and advancing initiatives focused on people affected by sickle cell conditions in Region 8.
For more than 30 years, NELASCAF has demonstrated how community-based organizations can work as community stakeholders and local and state government agencies to pursue national health care objectives.
To be added to NELASCAF’s press release distribution list, contact Medria Buford at email@example.com
2020 Report Card on the State of Sickle Cell Disease
June 9, 2019
Progress has been made toward improving the global state of sickle cell disease, but there is room for improvement. The State of Sickle Cell Disease 2020 Report Card ranks progress in four key areas where change must occur to improve quality of life for all individuals living with sickle cell disease.
Sickle Cell Disease Implementation Consortium Survey
June 9, 2019
The National Institutes of Health-funded Sickle Cell Disease Implementation Consortium (SCDIC) is conducting research to examine what it means to be an individual with sickle cell disease who is “unaffiliated” or “disconnected” from sickle cell disease care. Complete the ten-minute survey to share your experience.
September 17, 2020
Last November, just as the novel coronavirus was beginning its deadly trajectory through China, the sickle cell community in the U.S. was celebrating. Two potentially transformative drugs for sickle cell had just been approved by the FDA and clinical trials involving cutting-edge gene therapies were well underway.
“One of my colleagues called it ‘The November to Remember,’” recalled Biree Andemariam, chief medical officer of the Sickle Cell Disease Association of America and founding director of the New England Sickle Cell Institute at the University of Connecticut. “Literally, just before the pandemic hit, we had infused our first patient with one of the new drugs. And then everything stopped.”